3 lbs!

Not much to report today except that I have passed the 3 lb mark! Still doing good on the Decadron and weaning on the ventilator. Still eating and pooping. :)

What A Difference

A day makes. After receiving the Decadron for his lungs last night Colton has had a vast improvement. He is off the oscillating vent and back on the regular one, recieving good blood gasses and still (knock on wood) peeing. He is still feeding for now and they have him on antibiotics as a preventative measure while waiting for the blood cultures to come back. They may have to stop his feeds if he has infection but for now he is still getting his milk shakes. :)

Lungs, Kidneys & Possible Infection...Oh My!

Well we had another doctor meeting today and we have some good news and some not so good news. Colton is doing better on his kidneys. As of time of this post he is still off of the Lasix and still peeing. It seems as though he is on a good path and we might be seeing a little bit of maturity coming out of them.

On the not so good side, Colton hasn't been maintaining a high enough temperature today. They don't know if it is because they were in his isolette so much or if he truly has a low temp. Apparently preemies can show signs of infection from both a fever or a low temp. So they did an infection screen today and we'll see what comes back from that. Also, in the doctor meeting they let us know that Colton's lungs are looking sick. Now that he is making enough urine to get rid of the fluid in his body, his lungs should be clearing up and they are not, they are getting more wet. The doctors explained that because he has had so many episodes from the kidneys that the lungs are now paying the price. They are going to try a type of steroid on him to see if that will clear up his lungs. He is still on the oscillating vent and is on really high settings meaning he is needing a lot of support. :( Hopefully the drugs will work in the next few days and we'll see some difference.

CHOC Walk Update: For those of you that are participating in the CHOC Walk, you need to pick up your wristband prior to the day of the walk. Please go to http://www.chocwalk.org/pages.cfm?id=81 to see the different locations. They have a check-in this Friday the 10th at the Shops at Mission Viejo from 2:30pm until 8:30 pm which I will go to. If you would like me to pick up your wristband and info, please email me at amy.c@cox.net before Friday and provide me with your Registrant ID and password. I'm not sure that I can do this, but will see if they will let me pick up for other people. :)

The Dance is now a Jig

Things are moving at a slightly faster pace I now like to call the pee pee jig. :) Since we last posted Colton has been on and off of the lasix twice and on and off the oscillating ventilator twice. He pees a lot and then stops. The doctors chase his kidneys and then he over-pees. They pull back on the meds and he stops peeing. I actually had a doctor tell me today that they have never ever seen a baby so dependent on lasix. Oh my little boy is giving everyone a challenge already! As of the time of this post he is peeing well but still on the oscillating ventilator. He is off the lasix (for now).

On a more positive note, he is doing well on his feeds and is up to 1/2 oz. every 3 hours. And he weighs 2 lbs. 14.5 oz. Almost 3 lbs!

The Great Pee Pee Experiment is Over

Well, we knew the other shoe might drop and it did last night, kind of. The big pee pee experiment failed. They stopped the Lasix completely as of yesterday at 2pm and gave him extra Saline. Colton stopped peeing (surprise) and the extra fluid in his body went straight to his lungs. This caused his blood gasses to get really high. They tried bagging him to get the gasses down but ultimately had to put him back on the oscillating ventilator. We are hoping that this is a temporary measure until his blood gasses are back in normal range. They re-ordered the Lasix to make him start peeing. So, as the doctors say, we are chasing the kidneys. Its disheartening to take such big steps backwards but its what's best for Colton.

Start doing the pee pee dance again...

For our friend Donna, who's son Nicholas is in the hospital being treated for Leukemia, say some prayers also. He is getting some major news on his progress today. Donna....here is a photo for you!

Bake Sale

Just a quick entry from Mommy that if you live in our area and have a sweet tooth, come out to our bake sale this Saturday! We are going to be at the soccer fields next to Wagsdale Park (the dog park) starting at 8am. All net proceeds will go to sponsor our CHOC Walk team. Tell everyone you know!

From Crown Valley and the 5, turn right on O'Neil, make a left at the Cecil Pasture light into Wagsdale Park parking lot. Follow all the people. :)

Mini-Graduation

Today was a really busy day for me. Mommy came to visit around 10:30 this morning and met with my developmental nurse. She showed mommy what excercises she could do with me to help my leg and hips develop properly. It will also help with my stiffness, which has gotten much better but is still there a little bit.

Mommy got to kangaroo with me today which was really nice and while she was holding me they switched my bed! I had a mini-graduation into a new isolette. They needed my special isolette for a sicker baby and they say that I am ready for the next step. Yay me!

They are trying a new expirament with my pee pee meds. They are giving me more of the Bumex (sp?) and seeing if that will allow me to get off of the Lasix drip. Mommy and daddy are hoping that this doesn't mean that I'm going to stop peeing, but we shall see.