The NICU adventures of Colton Chilla as he grew and the journey of his mommy after he became an angel.
Friday, December 12, 2008
Heavy Heart
It is with a heavy heart that we write this post. As many of you know Colton has had a rough week and had many ongoing seizures. We knew in our hearts what path we were headed down. We met today with the neurologist and we were told that the damage to his brain was profound and that there was really no hope of him having any kind of quality life as you or I know it. Colton was moved to a private room this afternoon where we can be alone with him. We have opted to keep him with us for a few more days and then we will have the ventilator removed where he will go into a peaceful sleep. Colton will finally be at peace which is all we have ever wanted for him. We will treasure the four months we have had with him and he has taught us so much about ourselves. He is such a fighter and a little love. He made it to 5 and half pounds. Colton will forever be a part of all of us because each of you reading this gave a little part of yourself to him. If Donny and I don't get to each of you, know that your support and love were felt and known. We appreciate every kind word and gesture more than you all know. We will write a few more times on the blog to share some more thoughts as well as when the service for him will be. My beautiful boy loves you all, as do we.
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13 comments:
I just keep re-reading your post from Wednesday, "We love him so much and this just seems like torture for him." There are many ways that God heals, but we are sad and disappointed not to have been able to meet this brave baby. Know that you are in our thoughts and prayers ... and while there is great sadness, we know that his short life will not have been lived in vain. We will wait for the rest of his story to unfold ...
With much love, Paul, Lori, David and Melissa Lorenz
Colton,
Your tiny little heart touched us all in such a big way. Now we pray for you and your family and will miss you terribly.
Love,
Anna Mae and Eric
Colton,
You will be dearly missed. I hope you know how much everyone loves you and how much we will think of you for the rest of our lives. You have touched us all and showed us what a little fighter you are. Know how wonderful your mommy and daddy are and how much they love you. Only greater things wait for you. You will be missed - with love and affection, Jeff, Melissa, Sydney and Skyler.
Little Colton will be with us forever; he already has a special place in my heart. I'll be thinking of you and sending my prayers your way.
What a huge impact you have made on so many lives in such a short time, little guy. I will hold you in my heart now and always and promise to do my best to help support your mommy and daddy.
With love,
Melissa Gillespie
Colton, Your grandpa and grandma will always remember being with you and sharing these four months! We are happy you will soon be free and at peace! You will always be in our hearts and memories! --With much love, Grandpa Russ and Grandma Judi
We are praying for all of you who have been a part of Colton's life. We appreciate getting to know Colton on the blog and reading about his life. He is blessed to have been part of a family who loves him very much. Thanks for letting him come into our lives. Your family in Oklahoma. Love & prayers, Sharon
We are praying for all of you and know that God is there with you. Our family is here for you at any time, day or night, for anything at all. Stay strong and know that God wiil take care of you. Take peace in knowing that Colton has touched so many people in so many different ways. He is truly loved by so many. God bless you Colton and God bless your special family.
I can imagine the pain you are going through and I write this with tears in my eyes. I really felt little Colton was going to make it. My thoughts and prayers are with you. With what we are going through with Nicholas, I have learned that things happen for a reason, we can't change them, but we do learn from them. My favorite quote through all of this has been "Life is not about waiting for the storm to pass, it is about learning to dance in the rain." Move forth and use what Colton taught you to make the world a better place. Hugs, Donna
Chilla Family,
You and Little Colton dont know me, I used to work with Jennifer, and wanted to let you know that I have prayed very much for the Life and Soul of Little Colton he definitely knew nothing but Love. I truly care about your blessed family. God Bless
Herman
Colton, you touched so many hearts in your little life. Go with the angels little man, we will never forget you!!!!
Love
Uncle B, J, Bryant and Roxy
Colton,
Even though your time was short, you warmed many hearts and showed us all what a true fighter you were. You inspired many to come together, open their hearts, be strong and truly appreciate all things big and small ;-) In life we get caught up and forget to stop/pause to see the world around us. I just wanted to say "Thank You" for opening my eyes. What an amazing gift from such a cute little guy!! I've gotten to know your wonderful, caring parents even better over these months. They are so strong and blessed to have so many friends and family around them (but you already knew that). I know you will be with them and everyone forever. May God look after you for now.
Love Always,
Sarah, Jim, Ashley and Jacob Koclanis
I will never forget you little guy... I love you with all my heart and soul. Thank you for loving me and allowing me to love you.
You are now an Angel with wings!
So Much Love, Aunt Jenny
xoxoxoxoxoxoxo
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