Talk a Walk for Colton

Donny and I have heard time and again through this process that people want to do something for us...well, the time has come that we have something you can do! We just heard about (from our good friend Sarah) the CHOC walk on October 19th. CHOC is Children's Hospital of Orange County, which is where Colton has stayed at both hospitals. This is really an amazing facility and we'd like to invite you all to participate in helping raise money for this great hospital. The support services they have alone are priceless. We have formed a team named Colton's Cavalry and will all be walking together as a group. I am the captain and Sarah Koclanis is the co-captain. Here is our website for more details or to sign up:

http://www.chocforms.org/chocwalk/2008/Coltons_Cavalry/

UPDATE: When you sign up make sure you list your team as Colton's Cavalry not Colton's Calvalry. I mispelled it the first time and am trying to find a way to get the latter deleted.

UPDATE #2: Found a good FAQ page that answers a lot of questions about the walk. Talks about times, route, kids, etc. http://www.chocwalk.org/pages.cfm?id=65

Please sign up to walk, or if you can't walk, please donate on behalf of our team. If you are interested in participating you can either sign up directly on the website above or email me at amy.c@cox.net. We are going to try and get T-shirts made up for our team so please indicate your t-shirt size in an email to me after you have signed up. We are also thinking about having a bake-sale to raise money at Donny's work so if you are interested in donating a cake, pie, cookies or other yummy treat email me also.

This is very important to Donny and I (as well as Colton) so we hope to see you there! Any and everyone is welcome!

Now for an update....Colton is still pee-peeing. They have decreased his meds and are hoping to continue to do so. He has gotten a lot less puffy since so much of the fluid is leaving his system. He is still on the oscillating ventilator and we really want him off of it soon because he clearly hates it. He is doing well weaning off of it, so we are hoping in the next few days he can go back to the regular ventilator.

The nurses (as well as us) noticed over the last couple of days that his poor little legs and feet were extremely stiff. He is pointing his feet as if he were a ballerina on point shoes. Doctors call this "increased tone". They have told us that this could be a residual effect of the seizures or we could be looking at something more. But again, he is so little that they won't be able to diagnose or do a neurological assessment for at least a few weeks. He is showing slight improvement in his tone meaning things aren't quite as tight and stiff.

Big goal this week...get off the oscillating vent! Maybe we can do a breathing dance? :)